About the POHA:
Progressive Osseous Heteroplasia Association

What is POH (Progressive Osseous Heteroplasia)?

The Progressive Osseous Heteroplasia Association or POHA, supports education, research, and communication. Progressive Osseous Heteroplasia is a disease in which normal bone forms in muscles and connective tissue.

An important note about pohdisease.org

While the POHA tries its best to ensure that the information on this site is medically accurate, this site should not substitute for the advice of a physician.


Please join us on June 17, 2016 for a patient symposium help at the University of Pennsylvania Biomedical Research Bldg.  Hear from Drs. Kaplan and Shore, meet other patients in our community and much more.  The day will begin with sessions and lead into our very own wine tasting fundraiser.  On Saturday we will be heading to Phillies game and enjoying the sites of Philadelphia.  Please email caf427@aol.com for more information or click this link for wine tasting only  http://eventbrite.com/e/poha-wine-tasting-tickets-21876952554?aff=es2  .

Contacting POHA

Progressive Osseous Heteroplasia Association
1460 Bolingbrook Drive
Columbus, Ohio   43228

Telephone: 614.887.POHA (7642)

E-mail: Info@pohdisease.org



The POHA  will be hosting a National Symposium June 17th at the University of Penn.  There will be seminars for patients and parents.  Following the seminars there will be a wine tasting event with a Chinese Auction. On June 18th we will plan on attending a Phillies baseball game together.  This will also serve as a fund raiser.

We hope that all of our members can join us for this event.  Drs. Kaplan and Shore will be in attendance as well.  Please stay tuned as the planning continues.  Registration information will be emailed,  available online and sent regular mail to anyone that we have the correct address.  If you do not believe we have your correct information please fill out a patient information form on this site.