About the POHA:
Progressive Osseous Heteroplasia Association
What is POH (Progressive Osseous Heteroplasia)?
The Progressive Osseous Heteroplasia Association or POHA, supports education, research, and communication. Progressive Osseous Heteroplasia is a disease in which normal bone forms in muscles and connective tissue.
An important note about pohdisease.org
While the POHA tries its best to ensure that the information on this site is medically accurate, this site should not substitute for the advice of a physician.
Using pohdisease.org
From any page in our site, use the buttons at the left to find any section of the site, download the POH Guidebook for Families, donate to POHA, or return home.
Contacting POHA
Progressive Osseous Heteroplasia Association
5327 Westpointe Plaza Drive
#113
Columbus, Ohio 43228
Telephone: 614.887.POHA (7642)
BIG NEWS!
The Erin's Cure Casino Night raised over $13,000! Thank you to all who contributed to the event! The total for both casino events reach over $50,000!
The most exciting news of the evening came from Dr. Fred Kaplan himself. He announced at the event that a clinical trial for POH is only one to three years away. This is incredible news for the entire POH community!
We are so grateful to all of our supports as we strive for a cure for POH. We are close, but the race isn't over yet. Please continue to create awareness and support POH research.
