About the POHA:
Progressive Osseous Heteroplasia Association

What is POH (Progressive Osseous Heteroplasia)?

The Progressive Osseous Heteroplasia Association or POHA, supports education, research, and communication. Progressive Osseous Heteroplasia is a disease in which normal bone forms in muscles and connective tissue.

An important note about pohdisease.org

While the POHA tries its best to ensure that the information on this site is medically accurate, this site should not substitute for the advice of a physician.

Using pohdisease.org

From any page in our site, use the buttons at the left to find any section of the site, download the POH Guidebook for Families, donate to POHA, or return home.

Contacting POHA

Progressive Osseous Heteroplasia Association
1460 Bolingbrook Drive
Columbus, Ohio   43228

Telephone: 614.887.POHA (7642)

E-mail: Info@pohdisease.org



Board memebers Michael and Anita Rice generously donated $47,500 and we are expecting a matching donation!  The incredible generousity of others gives us all hope for a cure for POH and related diseases.


POHA hosted the first cross national board meeting in Philadelphia on Mrach 21, 2014.  Board members from NJ to California were in attendance.  Drs. Kaplan and Shore shared the great progress they and their team are making on POH research.  Most recently the pathway for the bone was discovered which opens many doors to their efforts.