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POHA News
Research
News
You can read the Annual Reports
of the POH Collaborative Research Project
on the web
Fundraising
The POHA relies on donations and fundraisings
events to help us reach our goals of sponsoring research and educating
people about POH. Donations can be made to POHA, 14031 S. Tamarack Drive, Plainfield. IL 60544-6356.
Volunteer
We may need help with translations so that all families can have
access to information they understand.
Symposium
Eighty-five FOP families and nine POH families attended the Third
International Symposium on FOP/POH, held November 2-5, 2000 in
Philadelphia, PA.
Contact
Us
We would love to hear from visitors to our web site. We invite
you to contact us and complete the
patient information form.
Updates
If you are not a member, we invite you to join the IFOPA. This
organization represents FOP, the sister disease to POH. Research
on both diseases is conducted in the same laboratory, directed
by Dr. Eileen Shore and Dr. Fred Kaplan. You will receive “The
FOP Connection” a quarterly newsletter which provides research
updates on both FOP and POH.
IFOPA
Membership Form |
