NEWS AND ARTICLES
Research News
You can read the Annual Reports of the POH Collaborative Research Project on the web
Volunteer
We may need help with translations so that all families can have access to information they understand.
Symposium
Eighty-five FOP families and nine POH families attended the Third International Symposium on FOP/POH, held November 2-5, 2000 in Philadelphia, PA.
Contact Us
We would love to hear from visitors to our web site. We invite you to contact us and complete the patient information form.
Fundraising
The POHA relies on donations and fundraisings events to help us reach our goals of sponsoring research and educating people about POH.
Click the Donate button to the left to make a donation to POHA or send it to the address below.
Progressive Osseous Heteroplasia Association
POHA
5327 Westpointe Plaza
#113
Columbus,Ohio 43228
Updates
If you are not a member, we invite you to join the IFOPA. This organization represents FOP, the sister disease to POH. Research on both diseases is conducted in the same laboratory, directed by Dr. Eileen Shore and Dr. Fred Kaplan. You will receive “The FOP Connection” a quarterly newsletter which provides research updates on both FOP and POH.
Click here to download the IFOPA Membership Form
News, Articles and Papers
Paternally Inherited Inactivating Mutations of the GNAS1 Gene In Progressive Osseous Heteroplasia
02/15/2011 -
EILEEN M. SHORE, PH.D., JAIMO AHN, PH.D., SUZANNE JAN DEBEUR, M.D., MING LI , B.A., MEIQI XU, B.S., R.J. MC KINLAY GARDNER, M.B., MICHAEL A. ZASLOFF, M.D., PH.D., MICHAEL P. WHYTE, M.D., MICHAEL A. LEVINE, M.D., AND FREDERICK S. KAPLAN, M.D.
N Engl J Med, Vol. 346, No. 2; January 10, 2002; www.nejm.org
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